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Seizures and epilepsy

Information on how education and care services provide proactive and reactive management for children and young people diagnosed with seizures and epilepsy.

The seizures and epilepsy in education and care procedure (under development) will describe how education and care services manage seizures and epilepsy.

Where a child or young person has complex or unstable seizures a referral should be made to the Access Assistant Program

Care plan

The seizure management plan HSP340 (DOC 1MB) provides instructions for the individual management of seizures.  These are completed by a treating health professional.

Health support agreement

Where a child or young person is identified to have seizures or epilepsy a health support agreement HSP120 (DOC 243KB) and safety and risk management plan HSP121 (DOC 147KB) should be completed.  These are completed by the parent and education or care service to document specific risk minimisation strategies, individualised management and treatment for the child in the context of the education or care service. 

The Health Support Agreement should clearly identify cultural, spiritual and language needs.

Seizure observation log

The seizure observation log HSP341 (DOC 127KB) is used to communicate between education and care staff and parents to assist treating health professionals in planning and support for children and young people.

Staff may be requested to complete the observation log by the parent or health professional. The observation log should be completed where education or care staff observe seizure activity that differs from what is described in the care plan.

First aid

All education and care staff are required to provide first aid measures following any care/management plan or support agreement and contacting emergency services if required.

The seizure management plan that has been developed for the child provides instructions in the event of a seizure.  

Standard first aid response is documented in the seizure first aid (PDF 118KB) and INM administration first aid (PDF 250KB) flowcharts.

The process to manage a seizure incident is documented in the management of a seizure incident flowchart (PDF 184KB).

An ambulance must be called immediately where
•    there is no previous history of seizures
•    an injury is suspected
•    there are breathing difficulties
•    staff require support
•    midazolam has been administered
•    required as documented in the care plan

Individual first aid plan

An individual first aid plan HSP124 (DOC 167KB) should be completed by the treating health professional to describe clear instructions for the management of the child or young person.

Intranasal midazolam (INM)

Education Midazolam is prescribed for some seizure types as an emergency response medication.  Where midazolam has been prescribed the treating health professional must provide an INM medication agreement HSP153 (DOC 184KB).

Intranasal is the only route midazolam can be administered in an education or care service.  Midazolam must be provided in plastic ampoules (5mg in 1ml). Glass ampules must not be held or administered in education and care services. 

Midazolam can only be administered by trained staff.  

It is important to follow the seizure management plan to identify the type of seizure to determine when the midazolam should be administered. 

Training and education

Staff must be appropriately trained to support children diagnosed with seizures or epilepsy. Seizure management is not the same for each child.  Training and support must be individualised to each child and the specific requirements documented in the care plan and support agreements for that child.

The Epilepsy Centre provides professional, individualised information and education services to education and care services including: 
•    lectures for professional and community groups
•    first aid instruction and workshops
•    midazolam training
•    conduct community and parent information sessions with guest speakers on all aspects of epilepsy care

To arrange an Epilepsy Centre education or training session at your education or care service complete the online training enquiry form.

Epilepsy Action Australia can provide onsite epilepsy awareness and seizure first aid training.  Training is provided onsite or via webinar by Epilepsy Nurse Educators and can be tailored to meet individual needs of a child or young person or the education or care setting.  To arrange a training session at your site email the Epilepsy Action training team at education [at] epilepsy.org.au or complete the online training booking form

Epilepsy Action Australia also have a suite of online courses designed to provide comprehensive and flexible education on epilepsy and seizures including.  
•    Epilepsy Essentials covering information about epilepsy and seizures, including descriptions and videos of different seizure types, as well as seizure first aid and management strategies.
•    Emergency Medication for Seizures is a comprehensive training that provides the skills and knowledge to administer emergency medications for seizures, including midazolam. The course includes how to manage prolonged and cluster seizures, responsibilities during the process and how to practically administer medications in a safe and timely manner. 

The Royal District Nursing Service (RDNS) provide Epilepsy Awareness education. For training enquiries contact RNDS 
•    phone 1300 364 264
•    email bookings.disabilities [at] rdns.org.au

Where a child or young person has a diagnosis of seizures and is attending the education or care service it is recommended all education and care staff watch videos (ie Epilepsy Action UK videos) to gain an understanding of what to expect if the child or young person has a seizure while in their care.  

Resources 

Management plan

HSP340 seizure management plan (DOC 1MB)

Health support agreement

First aid 

Medication management

HSP153 INM medication agreement (DOC 184KB)

Planning and management tools

Contact

Disability and complex needs team

Phone: 8226 3620
Email: education.health [at] sa.gov.au