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Seizures and epilepsy

Information on how education and care services provide proactive and reactive management for children and young people diagnosed with seizures and epilepsy.

Summary

The standard seizure first aid (PDF 118KB) is the default plan to manage seizures in education and care and must be followed unless a health professional or epilepsy specialist has advised otherwise and this is documented in a seizure management plan HSP340 (DOC 1.1MB).

All seizure incidents are managed in education and care by following the management of a seizure incident flowchart (PDF 184KB)

The seizures and epilepsy in education and care procedure (under development) will describe how education and care services manage seizure incidents, how to plan and manage for child with a known seizure history, and information on types, severity and complexity of seizures and epilepsy.

Where a child or young person has complex or unstable seizures a referral should be made to the Access Assistant Program

Child having seizure with no known seizure history

A child appears to be having a seizure incident and there is no information about their health:

  1. Follow standard seizure first aid (PDF 118KB) and management of a seizure incident flowcharts (PDF 184KB).

As soon as possible after the seizure incident:

  1. Meet with parents/guardians to discuss the incident 
  2. Develop a health support agreement HSP120 (DOC 243KB) and safety and risk management plan HSP121 (DOC 147KB)
  3. Parent to provide a seizure management plan HSP340 (DOC 1MB)
  4. Staff undertake seizure training and education 

The child can return to the education and care services without a care plan and be managed by standard seizure first aid if there is another seizure incident.

Child with known seizure history

The education and care service are advised by the parent/guardian that a child has a history of seizures:

  1. Parent to provide a seizure management plan HSP340 (DOC 1MB)
  2. Develop a health support agreement HSP120 (DOC 243KB) and safety and risk management plan HSP121 (DOC 147KB)
  3. Staff undertake seizure training and education 

If a seizure occurs in the education and care service it is managed by following the:

  1. seizure management plan HSP340 (DOC 1MB)
  2. management of a seizure incident flowchart (PDF 184KB), and (if required)
  3. Intranasal midazolam administration first aid (PDF 250KB)

As soon as possible after the seizure incident:

  1. complete the seizure observation log HSP341 (DOC 141KB)
  2. complete an IRMS report (requires staff login)
  3. review (and update if required) the health support agreement HSP120 (DOC 243KB) and safety and risk management plan HSP121 (DOC 147KB)

 

Training and education

Staff must be appropriately trained to support children diagnosed with seizures or epilepsy. Seizure management is not the same for each child.  Training and support must be individualised to each child and the specific requirements documented in the care plan and support agreements for that child.

Registered Nurse Delegation of Care program (RNDCP)

The Registered Nurse Delegation of Care program (RNDCP) provides professional, individualised training delivered at your site. RNDCP staff have expert knowledge on supporting children with complex needs in an education setting, and delivering competency based training that is relevant for education staff. 

The RNDCP epilepsy training includes:

  • general information about epilepsy and seizures, seizure first aid and management strategies
  • individualised training to the child or young person’s Seizure Management Plan
  • the skills and knowledge for education staff to confidently administer midazolam (where prescribed).

To access this service please complete the WCHN Disability Services referral form. The parent needs to complete the second page to consent to RNDCP contacting their child’s treating paediatric neurology team to ensure they have the most current information to provide the training session individualised for the child.

  • select RNDCP from the details of support required
  • select other – and write Dept for Education – staff training
  • under reason for referral (on page 2) write epilepsy training.

The Epilepsy Centre

The Epilepsy Centre provides professional, individualised information and education services to education and care services including: 

  • lectures for professional and community groups
  • first aid instruction and workshops
  • midazolam training
  • conduct community and parent information sessions with guest speakers on all aspects of epilepsy care

To arrange an Epilepsy Centre education or training session at your education or care service complete the online training enquiry form.

Epilepsy Action Australia

Epilepsy Action Australia can provide onsite epilepsy awareness and seizure first aid training.  Training is provided onsite or via webinar by Epilepsy Nurse Educators and can be tailored to meet individual needs of a child or young person or the education or care setting.  To arrange a training session at your site email the Epilepsy Action training team at education [at] epilepsy.org.au or complete the online training booking form

Epilepsy Action Australia also have a suite of online courses designed to provide comprehensive and flexible education on epilepsy and seizures including.  

  • Epilepsy Essentials covering information about epilepsy and seizures, including descriptions and videos of different seizure types, as well as seizure first aid and management strategies.
  • Emergency Medication for Seizures is a comprehensive training that provides the skills and knowledge to administer emergency medications for seizures, including midazolam. The course includes how to manage prolonged and cluster seizures, responsibilities during the process and how to practically administer medications in a safe and timely manner. 

Royal District Nursing Service (RDNS)

The Royal District Nursing Service (RDNS) provide Epilepsy Awareness education. For training enquiries contact RDNS 

  • phone 1300 364 264
  • email bookings.disabilities [at] rdns.org.au

Where a child or young person has a diagnosis of seizures and is attending the education or care service it is recommended all education and care staff watch videos (ie Epilepsy Action UK videos) to gain an understanding of what to expect if the child or young person has a seizure while in their care.  

Resources 

Management plan

Health support agreement

First aid 

Medication management

Planning and management tools

Contact

Disability and complex needs team

Phone: 8226 3620
Email: education.health [at] sa.gov.au